
When to Consider Hospice
Discussing Hospice early in the disease process gives patients and families time to make important health care decisions regarding their wishes for end of life care.
If any of these sound familiar, it may be appropriate to consider Hospice care:
Hospice Benefit Qualifiers
Curative treatment ending or no longer desired
Frequent trips to the ER or recent hospitalizations
Weight loss or decrease in appetite
Increase in weakness or falls
More help required with activities of daily living
Worsened shortness of breath ot need for oxygen most/all of the time
Multiple changes and adjustments to medication because of ineffectiveness or an increase in the number of medications required to control symptoms
Not progressing in therapies
Change in DNR status
Quality of Life Concerns
Loss of functional abilities
Reduced activity tolerance
Weight loss, difficulty swallowing, refusing food, decrease appetite
Dehydration and changes in renal function
Increasing frailty
Increase sleep
Withdrawal/depression
Diminished cognitive abilities
Bowel and bladder incontinence
Loss of speaking ability
Struggle to Manage Chronic Conditions
Loss of functional abilities
Reduced activity tolerance
Weight loss, difficulty swallowing, refusing food, decrease appetite
Dehydration and changes in renal function
Increasing frailty
Increase sleep
Withdrawal/depression
Diminished cognitive abilities
Bowel and bladder incontinence
Loss of speaking ability
When is an ALS patient eligible for hospice care?
Patients are considered to be hospice-eligible for amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) if they meet the following guidelines:
BOTH rapid progression of ALS and decreased ability to breath on one’s own or
BOTH rapid progression of ALS and critical nutritional impairment with a decision not to
receive artificial feeding or
BOTH rapid progression of ALS and life-threatening complications such as:
Recurrent aspiration pneumonia
Pressure sores/impaired skin integrity, multiple, stage 3-4, particularly if infected
Upper urinary tract infection
Sepsis
Fever that continues after antibiotics
Patients with neurological diseases may be eligible for hospice when they experience the following signs or symptoms: STROKE, PARKINSON’S, MULTIPLE SCLEROSIS
Severely compromised breathing, marked by inability to clear respiratory secretions, persistent cough, or recurring aspiration pneumonia
Increased shortness of breath, even at rest or on oxygen
Inability to swallow liquids or soft food without choking or coughing; progression to a mainly pureed diet
Spends most of the time in the same room, chair or bed
Barely intelligible speech
Continued weight loss
Inability to manage most activities of daily living
Oncology
Typically, these patients:
Are unable to carry on normal activity or do normal work
Are unable to move or ambulate; spend more than 50% of their time in a bed, chair or a single room
Exhibit evidence of significant disease
Are able to provide only limited self-care
Have reduced nutritional intake
Other indicators and symptoms:
Patient refusing dialysis or stopping dialysis
25%–30% of patients on dialysis who are declining with other comorbid disease, such as cancers, end-stage heart disease, end-stage lung disease
Weight loss
Functional decline
Cognitive decline
Social withdrawal
Uncontrolled pain
Frequent nausea
End-Stage Renal Disease
Common indicators of end-stage renal disease:
Confusion, decreased level of consciousness, uncontrolled nausea and vomiting, generalized itching of the skin, restlessness, "restless legs"
Decreased urine output: urine output <400 cc/24 hrs
uncontrolled hyperkalemia: persistent serum potassium >7.0
Uremic pericarditis
Hepatorenal syndrome
uncontrolled fluid overload
Other indicators and symptoms:
Patient refusing dialysis or stopping dialysis
25%–30% of patients on dialysis who are declining with other comorbid disease, such as cancers, end-stage heart disease, end-stage lung disease
Weight loss
Functional decline
Cognitive decline
Social withdrawal
Uncontrolled pain
Frequent nausea
Increasing weakness
Low blood pressure caused by position changes
Dehydration
Decreasing muscle mass
Impaired immune function
Increase in infections
Decrease in sympathetic response to stressors
COPD Patients
Hospice Benefit Qualifiers
Shortness of breath at rest
Dependent on supplemental oxygen
Fatigue
Diminished exercise capacity
Less ability to function normally
Symptomatic at rest
Mostly bed-bound
Not a candidate for further medical intervention
If any of the above sound familiar, it may be appropriate to consider Hospice care.
“COPD is the 3rd leading cause of death by disease in the United States. More than 16.4 million people have been diagnosed with COPD.” - American Lung Association 2021
“Almost six million Americans have heart failure and more than 870,000 people are diagnosed with heart failure each year.” Cleveland Clinic
“Heart failure is the leading cause of hospitalization in people older than 65.” Cleveland Clinic
Heart Failure Patients
Hospice Benefit Qualifiers
Angina (chest pain)
Fatigue
Diminished exercise capacity
Shortness of breath
Less ability to function normally
Symptomatic at rest
Edema
Mostly bed-bound
Heart medication no longer effective
Not a candidate for further surgical or medical intervention
If any of the above sound familiar, it may be appropriate to consider Hospice care.
Dementia Patients
Hospice Benefit Qualifiers
Dependence on others for assistance with activities of daily living
Inability to walk without assistance
Speaking only a few words and phrases
Continuous anxiety and stress
Falls
Multiple hospitalizations and/or ER trips
Infections
Eating problems
Incontinence
If any of the above sound familiar, it may be appropriate to consider Hospice care.
Dementia is a leading cause of death in the United States, but is underrecognized as a terminal illness - NEJM 2009